Patient Stories*

Testimonials from Sucraid® Patients

gsid sucraid girls patients at camp“Sucraid® helps by doing what our bodies cannot do very well–digest sucrose–and that could mean fewer symptoms and more options. Sucraid® provides us with more food options and with the possibility of larger quantities within those food choices. Starting Sucraid® brought the ability to tolerate such things as fruits other than berries and lemon, the ability to avoid carefully scrutinizing food content and constant sucrose-gram counting, and eventually the freedom to occasionally eat more popular, sucrose-containing foods like pizza. Sucraid® also brought dependence with it which is sometimes hard to accept as you carry your medicine cooler everywhere, but with the acceptance of that dependence comes more freedom.” –Aileen, Michigan


gsid sucraid boy patient eating chocolate ice cream“When my son was first diagnosed with CSID and I realized how much his diet needed to be restricted, I thought it might be near impossible and I feared his diet would be so restricted that it would be unhealthy. And I was already experienced at doing restricted diets with other family members. Sucraid® made my son’s diet (and my life!) more manageable. After a year or so with Sucraid® therapy, my son felt like he could eat more like a normal kid!” –Kristi, New York


“Overall, I cannot thank QOL Medical enough for everything- the availability and overall assistance in relation to what Sucraid® has done for me.” -Debra, Minnesota


“Sucraid® means a lot to our family because Ashtyn is able to eat more foods with Sucraid®.” –Kelli, Texas


“For us, Sucraid® is the difference between strict diet adherence and a more normal diet. Sucraid® means more freedom of choice for us.” –Aileen, Michigan


“My son is now able to drink infant formula and eat sucrose-containing foods that would normally cause severe, frequent episodes of diarrhea, and weight loss. As a mother, it is devastating to watch your baby deteriorate before your eyes and not know what is causing him to react to certain foods in this horrifying way. To get the proper diagnosis and then to be able to manage his diet with the right foods and Sucraid® has been just what we needed.” –Briana, Florida


“We give our toddler son a dose of Sucraid® (28 drops) with each bottle/meal. We have seen a dramatic change in the past 2 months from 14-15 BMs a day to 1-3 at most. He has been able to gain weight, which the doctor says has helped him to grow.” –Briana, Florida


“I like Sucraid® because then my tummy doesn’t hurt.” –Anni, 10 year old patient, Michigan


“With Sucraid® I have more options to eat the foods I want to eat, from anywhere, like what I cook at home, to eating out, and in different parts of the country and their cuisine.” -Cole, Oregon


Csid gsid female adult patient dosing sucraid“Sucraid® has allowed me to expand the variety of foods that I eat. Sucraid® has made it possible for me to eat out.” -Debra, Minnesota


Csid sucraid male teen patient standing on stairs“My family and I have had tremendous support from QOL’s support programs, especially from their assistance program to make it affordable for my family. Also from their pharmacists, nurses, and whoever we talk to when refilling my prescription- they always go the extra step.” -Cole, Oregon


“The patient support has been absolutely phenomenal and helpful.” –Meredith, Utah


“QOL Medical has been amazing. They have assisted me so much throughout the years I have been on Sucraid®. Through the QOL assistance program, I have been able to have peace of mind that I will always be able to get Sucraid®. I have been through career and insurance changes over the years. I am confident that I will continue to seamlessly be able to receive Sucraid®, and that they will assist me not only financially, but also be an advocate if needed in dealing with the insurance company. –Debra, Minnesota


“Sucraid® has helped Ashtyn with having less loose stools. She has been able to gain and maintain weight since starting Sucraid®.” -Kelli, Texas


Csid sucraid infant male patient in mothers arms“I have had the best experience with QOL Medical’s support program. All of my questions and concerns have been answered during this process. Brandi Rabon, the CSID Patient Advocate, has made an unbearable situation bearable for my entire family. She has given us the resources, support, and tools to manage my son’s CSID. Thanks to her, we do not feel alone in this.” –Briana, Florida


“The folks at QOL Medical go above and beyond. They have been more helpful and more effective than any insurance company, medical supply company, or union representative I have ever dealt with. Whenever I have had a concern, I have never had to make more than one phone call. They have dealt with my insurance company and made my involvement effortless and painless.” –Kristi, New York


QOL Medical is interested to hear from Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency patients and caregivers regarding their experience with Sucraid® (sacrosidase) Oral Solution. Please use the form below to share your story.

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* Actual, unscripted, patient testimonials. Results and side effects may vary by individual. Please see full prescribing information including warnings and side effects.

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