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Dietary/Peer Support

Consultation and Outreach With a Registered Dietitian

Since carbohydrate tolerance and gastrointestinal (GI) symptoms are highly variable among patients diagnosed with Genetic Sucrase-Isomaltase Deficiency (GSID), dietary treatment should be customized for each patient. To ensure the diet meets the individual’s nutrient needs, the patient should be referred to a Registered Dietitian (RD) specializing in gastroenterology for diet assessment, education, and follow up.

An elimination diet may be beneficial when a patient initiates Sucraid® therapy. Eliminating both sucrose and starch is only recommended for one to two weeks, as it may not be nutritionally complete. After two weeks, sucrose- and starch-containing foods are systematically added back to the diet.

Getting Started With a Low-Sucrose, Low-Starch Diet

Call the SucraidASSIST™ (Access and Support Services in Sucraid® Therapy) Registered Dietitian at 1-800-705-1962, for further diet information and resources.

Peer Support Coach

Because Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency is a rare disorder, many patients and caregivers do not have the opportunity to speak with other patients and caregivers. To address this need for community and support, SucraidASSIST™ offers Peer Coaches–other adult patients or parents/caregivers caring for a child with Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency–who can be a resource to other patients. To contact a SucraidASSIST™ Peer Coach, please email Brandi Rabon, Patient Support Services Manager at brabon@onepatientservices.com.

The diagnosis of Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency may bring up many emotions and questions. Having an experienced patient/caregiver to speak with can be extremely valuable to patients. Peer Coaches are an important component of SucraidASSIST™, QOL Medical’s comprehensive patient support program. Peer coaches offer the following support services:

  • Provide empathy and psychosocial support from an experienced patient/caregiver perspective
  • Share tips on coping and daily living with a diagnosis of Genetic Sucrase-Isomaltase Deficiency
  • Introduce patients and caregivers to online support communities
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