Dietary/Peer Support

Consultation and Outreach with a Registered Dietitian

Some patients with CSID require dietary modification in addition to enzyme replacement therapy with Sucraid® (sacrosidase) Oral Solution. SucraidASSIST™, through an experienced Registered Dietitian (RD), can:

  • Provide outreach to Sucraid® prescribers to assess the availability of dietary education and support
  • Provide expert dietary consultation to RDs working with patients
  • Supply dietary educational materials for patients as needed
  • Foster development of professional communities for dietitians and nutritionists with an interest in Genetic Sucrase-Isomaltase Deficiency

Diet Guides

Peer Support Coach

Because Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency is a rare disorder, many patients and caregivers do not have the opportunity to speak with other patients and caregivers. To address this need for community and support, SucraidASSIST™ offers Peer Coaches–other adult patients or parents/caregivers caring for a child with Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency–who can be a resource to other patients. To contact a SucraidASSIST™ Peer Coach, please email Brandi Rabon, Patient Support Services Manager at [email protected].

The diagnosis of Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency may bring up many emotions and questions. Having an experienced patient/caregiver to speak with can be extremely valuable to patients. Peer Coaches are an important component of SucraidASSIST™, QOL Medical’s comprehensive patient support program. Peer coaches offer the following support services:

  • Provide empathy and psychosocial support from an experienced patient/caregiver perspective
  • Share tips on coping and daily living with a diagnosis of Genetic Sucrase-Isomaltase Deficiency
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