Taking Sucraid®

Dosage and Administration

Please follow the dosing instructions for Sucraid® (sacrosidase) Oral Solution carefully. The recommended dosage is as follows:

  • 1 mL (8,500 I.U.) (one full measuring scoop or 28 drops) per meal or snack for patients up to 15 kg (33.07 lbs.) in body weight.
  • 2 mL (17,000 I.U.) (two full measuring scoops or 56 drops) per meal or snack for patients over 15 kg (33.07 lbs.) in body weight.

Dosage should be diluted in 2 to 4 ounces of water, milk or infant formula, and may be measured with the 1 mL measuring scoop (provided) or by drop count method (1 mL equals 28 drops from the Sucraid® container tip).

The following should be noted in regard to administration, storage and expiration of Sucraid®:

  • It is suggested that half of each dose be taken before the meal and the other half be taken during the meal.
  • The beverage or infant formula should be served cold or at room temperature. Do not heat beverages containing Sucraid®, or add Sucraid® to hot beverages, as the heated fluid could decrease the potency of the enzyme.
  • Sucraid® should be refrigerated at 36°F-46°F (2°C-8°C) and should be protected from heat and light.
  • Sucraid® should not be reconstituted or consumed with fruit juices as the acidity may reduce the enzyme activity.
  • Discard bottles of Sucraid® four weeks after first opening due to the potential for bacterial growth.

Your doctor may recommend avoiding starch for two weeks and then gradually adding starch back into the diet while monitoring symptoms.

Traveling with Sucraid®

Sucraid® should be refrigerated at 36°F-46°F (2°C-8°C) and should be protected from heat and light. For this reason, traveling with Sucraid® can be difficult. Parents and caregivers of patients with Genetic Sucrase-Isomaltase Deficiency have used a variety of techniques to travel with Sucraid®.

Common travel ideas for transporting a Sucraid® bottle are:

  • A cooler with reusable ice gel packs or ice blocks. (The bottle should be wrapped in an insulated lunchbox or protective compartment so Sucraid® will not freeze completely if using dry ice.)
  • Insulated lunchboxes with reusable ice gel packs or ice blocks
  • Medical coolers
  • A wide-mouthed thermos-type bottle, packed with ice
  • Insulated bags intended for baby bottles
  • Insulated bags with coolant inside that allows the entire bag to be frozen before inserting the Sucraid® bottle

Letter of Medical Necessity

Traveling by plane with Sucraid® can also prove to be challenging. The United States Transportation Security Administration permits “prescription liquid medications and other liquids needed by persons with disabilities and medical conditions. This includes all prescription and over-the-counter medications. This also includes gels or frozen liquids needed to cool disability or medically-related items used by persons with disabilities or medical conditions.” Sucraid® can go through the x-ray machine as part of the security process without any efficacy concerns.

People have found that the burden of traveling with Sucraid® is reduced when a physician drafts a letter of medical necessity. The letter of medical necessity should include the following information:

  • Patient’s name
  • Patient’s date of birth
  • Patient’s diagnosis of Genetic Sucrase-Isomaltase Deficiency/Congenital Sucrase-Isomaltase Deficiency
  • Patient’s need for Sucraid®
  • The need for Sucraid® to be refrigerated/maintained at 36°F-46°F (2°C-8°C)
  • The need for any ice gel packs or ice blocks to be kept with the Sucraid® at all times

Please click this link to access a sample letter that patients can bring to their healthcare provider for signature, and then use during their travel.

Letter of Medical Necessity

Traveling with Sucraid® poses some unique challenges. For longer trips, it is advised to find out if your destination has a refrigerator available.

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QOL Medical, LLC

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