Please follow the dosing instructions for Sucraid® (sacrosidase) Oral Solution carefully. The recommended dosage is as follows:
Dosage should be diluted in 2 to 4 ounces of water, milk, or infant formula, and may be measured with the 1 mL measuring scoop (provided) or by drop count method (1 mL equals 28 drops from the Sucraid® container tip).
The following should be noted in regard to administration, storage, and expiration of Sucraid®:
Your doctor may recommend avoiding starch for two weeks and then gradually adding starch back into the diet while monitoring symptoms.
Sucraid® should be refrigerated at 36°F-46°F (2°C-8°C) and should be protected from heat and light. For this reason, traveling with Sucraid® can be difficult. Parents and caregivers of patients with Genetic Sucrase-Isomaltase Deficiency have used a variety of techniques to travel with Sucraid®.
Common travel ideas for transporting a Sucraid® bottle are:
Traveling by plane with Sucraid® can also prove to be challenging. The United States Transportation Security Administration permits “prescription liquid medications and other liquids needed by persons with disabilities and medical conditions. This includes all prescription and over-the-counter medications. This also includes gels or frozen liquids needed to cool disability or medically-related items used by persons with disabilities or medical conditions.” Sucraid® can go through the x-ray machine as part of the security process without any efficacy concerns.
People have found that the burden of traveling with Sucraid® is reduced when a physician drafts a letter of medical necessity. The letter of medical necessity should include the following information:
Please click this link to access a sample letter that patients can bring to their healthcare provider for signature, and then use during their travel.
Traveling with Sucraid® poses some unique challenges. For longer trips, it is advised to find out if your destination has a refrigerator available.